People with Rett Syndrome (RTT) in Fairhope, Alabama have access to a variety of legal services to protect, promote and expand their rights. RTT is a neurological disorder that affects almost exclusively women, with a prevalence of one in every 10,000 to 23,000 people. It is known that RTT can occur in men, but it is extremely rare. Recurrence in families is also extremely rare.
In these families, men may have a very different pattern, including miscarriages, premature death due to fatal encephalopathy, or other neurodevelopmental abnormalities. The Alabama Early Intervention System (EIS) provides assistance to children from birth to 36 months of age who have a medical diagnosis that may delay development. Family empowerment representatives are volunteers who offer emotional support, information and resources to families affected by Rett syndrome. The Alabama State Department of Education Transition Services and the Alabama Department of Senior Services are also available to help those with RTT. The Alabama Disability Advocacy Program (ADAP) provides legal services to Alabamans with disabilities to protect, promote and expand their rights. ADAP can help those with RTT who are improperly denied benefits and need legal advice.
Additionally, the UAB Rett Center and the Rett Syndrome Clinic offer physical therapy, occupational therapy and speech therapy services for those with RTT. Furthermore, individuals with RTT may be able to participate in studies and trials to advance the treatment and knowledge of Rett syndrome. The purpose of these studies is to advance the understanding of the natural history of Rett syndrome (RTT), MECP2 duplication disorder (MECP2 Dup), RTT-related disorders such as CDKL5 and FOXG1, and people with MECP2 mutations who do not have RTT. In conclusion, there are many legal services available for people with Rett Syndrome in Fairhope, Alabama. These services include the Alabama Early Intervention System (EIS), the Alabama State Department of Education Transition Services, the Alabama Department of Senior Services, the Alabama Disability Advocacy Program (ADAP), the UAB Rett Center and the Rett Syndrome Clinic. Additionally, people with RTT may be able to participate in studies and trials to advance the treatment and knowledge of Rett syndrome.