Are you looking for respite care services for someone with Rett Syndrome in Fairhope, Alabama? If so, you are not alone. Rett Syndrome (RTT) is a neurological disorder that affects almost exclusively women, with a prevalence of one in every 10,000 to 23,000 people. It is known to occur in men, but it is extremely rare. Recurrence in families is also extremely rare.
Respite care provides parents and other caregivers with short-term child care services that offer temporary relief, improve family stability, and reduce the risk of abuse or neglect. Respite can be planned or offered during emergencies or times of crisis. It may be available for foster families, relatives and adoptive families, as well as for biological families who need support. There are clinics that specialize in RTT that can help you provide specific care for your child. Planning for a possible emergency is somewhat easier for families who regularly use planned respite or who participate in other support services for family caregivers.
Visit the Alabama Early Intervention System website 1-800-543-3098 The EIS serves children from birth to 36 months of age who have a medical diagnosis that may delay development. The Colorado Respite Coalition developed a resource directory that includes an online resource and relay search engine, which is an online database that helps parents, family caregivers and professionals find temporary care services in Colorado and local areas that fit their specific needs. The Location Service does not endorse any service provider and assumes no responsibility for any claims that arise from this Location Service database or its use. When the family is already in crisis due to a situation that justified an emergency respite, they must have the confidence that their loved one will receive care in a safe, responsible and supportive manner. Family empowerment representatives are volunteers who provide emotional support, information, and resources to families affected by Rett Syndrome. The Location Service does not check the background or references of any company or person listed in the database. Well in advance of any emergency or crisis situation, family caregivers should do their best to identify home care providers or programs for people outside the home in the immediate area that provide emergency respite.
The networks also create a mechanism for families to participate in the planning of state and local mental health services and in the development of policies. Respite Tennessee Department of Mental Health's substance abuse services explains Planned Respite, a program in Tennessee that helps caregivers of children with serious emotional disorders learn the skills needed to receive respite care. You can also contact a NE Lifespan Respite Network regional coordinator who can help you find services. The ADRC provides information and assistance to seniors, adults with physical disabilities, caregivers and professionals seeking services or programs available in Tennessee. Accelerate full-spectrum research to cure Rett Syndrome and empower families with information, knowledge and connectivity. Shiloh House (201) provides a safe and welcoming environment for young people in foster care to provide respite to families in Colorado and avoid disrupting placements for young people who may be at risk of being separated from their families or who are already in foster care. Finding respite care services for someone with Rett Syndrome can be challenging but there are many resources available to help you find the right service provider.
The Alabama Early Intervention System website 1-800-543-3098 provides information on medical diagnosis that may delay development while the Colorado Respite Coalition's online resource search engine helps parents find temporary care services in their local area. The NE Lifespan Respite Network regional coordinator can also help you find services while Family Empowerment Representatives provide emotional support and resources to families affected by Rett Syndrome. Finally, Shiloh House (201) provides a safe environment for young people in foster care to provide respite to families.