Living with Rett Syndrome can be a difficult and challenging experience, but there are resources available in Fairhope, Alabama that can help those affected by this rare neurological disorder. From Transition Services to clinical trials, there are many options available to help those living with Rett Syndrome. The Alabama State Department of Education provides Transition Services to assist those with Rett Syndrome as they transition into adulthood. The Alabama Department of Senior Services also offers resources for those living with Rett Syndrome.
The Alabama Disability Advocacy Program provides information on transition services and laws. Family empowerment representatives are volunteers who provide emotional support, information and resources to families affected by Rett Syndrome. Joining the Girl Power 2 Cure team is an honor, as it is a cause to find a cure for those affected by Rett Syndrome. United Ability's Ability Clinic provides physical therapy, occupational therapy and speech therapy services, and has treated many children with Rett Syndrome and are familiar with their specific needs.
Clinics that specialize in Rett Syndrome can also help provide specific care for your child. Rett Syndrome clinical trials are available at several stages of the process. Visit our clinical trials page for current enrollment status. Your child may be able to participate in studies and trials to advance the treatment and knowledge of Rett Syndrome.
Overall, although it is a rare and little known disease, great strides are being made in the search for life-changing treatments for Rett Syndrome. Amei brings a genuine passion to raising awareness, supporting families, education and raising funds for symptom-focused treatments and, ultimately, to cure Rett Syndrome. In addition to the resources mentioned above, there are also support groups available for those living with Rett Syndrome in Fairhope, Alabama. These support groups provide a safe space for individuals to share their experiences and connect with others who understand what they are going through. They also provide educational resources about the condition and how to manage it. Living with Rett Syndrome can be difficult but there are resources available in Fairhope, Alabama that can help those affected by this condition.
From Transition Services to clinical trials, there are many options available to help those living with Rett Syndrome.