People with Rett Syndrome (RTT) and their families in Fairhope, Alabama have access to a variety of educational resources that can help them reach their highest levels of academic, physical, and personal performance. The Alabama Disability Advocacy Program (ADAP), local school districts, preschools, schools, adult day programs, recreation and rehabilitation centers, and special needs services are all available to provide support. The Alabama State Department of Education Transition Services, Alabama Department of Senior Services, and Alabama Disability Advocacy Program provide information on transition services and laws, as well as special education lawyers. The International Rett Syndrome Foundation (IRSF) is dedicated to providing families and caregivers with the knowledge they need to care for their loved ones.
Every month, they offer unique opportunities for families, caregivers, doctors, and therapists to learn about different topics related to RTT. Rett University is an online learning platform designed for parents, educators, therapists, and other students with complex needs. Experienced professionals share their expertise on how to help students reach their highest levels of academic, physical, and personal performance. Girl Power 2 Cure is a non-profit organization that supports families affected by RTT. The IRSF focuses on creating a world without RTT by driving life-changing advances in research to find a cure.
There are also clinics that specialize in RTT that can provide specific care for children. The Education for Persons with Disabilities Act (first enacted in 1975 and revised in 2000) requires each state to provide all eligible children with a public education that meets their particular needs. This includes a very low student-to-teacher ratio which contributes greatly to individualized care. Additionally, an Individualized Education Program (IEP) is available to help meet the needs of each student. The International Rett Syndrome Foundation also offers Family Empowerment Representatives who are volunteers who provide emotional support, information, and resources to families affected by RTT. The primary care guidelines for RTT offer suggested visiting times by clinical area of evaluation, specific concerns to consider, and deadlines for follow-up appointments.
United Ability's Ability Clinic provides physical therapy, occupational therapy and speech therapy services and has treated many children with RTT. Finally, there are opportunities for people with RTT to participate in studies and trials to advance the treatment and knowledge of the disorder. Rett University is an e-learning platform designed for parents, educators and therapists of students with RTT and other students with complex needs. For people with Rett Syndrome living in Fairhope, Alabama there are many educational resources available that can help them reach their highest potential. From the Alabama Disability Advocacy Program to the International Rett Syndrome Foundation's Family Empowerment Representatives there are many options available for individuals with RTT and their families.