If you or someone you know is living with Rett Syndrome in Fairhope, Alabama, it's essential to be aware of the resources and services available to help. The University of Alabama at Birmingham (UAB) is one of 15 institutions in the US that has been designated as a Center of Excellence by the International Rett Syndrome Foundation. This recognition makes UAB a go-to clinic for local families and helps to educate other doctors about Rett Syndrome care. In addition to UAB, there are other organizations that provide support and resources for people with Rett Syndrome in Fairhope.
The Alabama State Department of Education Transition Services, the Alabama Department of Senior Services, and the Alabama Disability Advocacy Program all offer information on transition services and laws. The Alabama Disability Defense Program (ADAP) provides legal services to Alabamans with disabilities to protect, promote, and expand their rights. Family empowerment representatives are also available to provide emotional support, information, and resources to families affected by Rett Syndrome. Girls and women with Rett Syndrome can benefit from a wide range of emotions and enjoy satisfying social, recreational, and educational experiences at home and in the community.
Clinics that specialize in Rett Syndrome can also help provide specific care for your child. United Ability's Ability Clinic offers physical therapy, occupational therapy, and speech therapy services, and has treated many children with Rett Syndrome. Rett Syndrome is a complex disorder that requires specialized attention and understanding to help your child and family thrive. Clinics that specialize in Rett Syndrome understand the diagnostic criteria for the disorder and are dedicated to identifying the diverse needs of people diagnosed with it.
The Alabama Early Intervention System (EIS) serves children from birth to 36 months of age who have a medical diagnosis that may delay development. Unfortunately, there are no approved treatments for Rett Syndrome yet. However, research from clinical trials will play an essential role in ensuring that therapeutic development progresses as quickly as possible. It's important to stay informed about advances in research so that you can take advantage of any new treatments or therapies that become available. At the end of the day, it's important to remember that you're not alone if you or someone you know is living with Rett Syndrome in Fairhope, Alabama.
There are resources available to help you get the support you need.