If you or someone you know is living with Rett Syndrome in Fairhope, Alabama, there are a number of resources and services available to help. Rett Syndrome is a complex disorder that requires specialized attention and understanding to ensure those affected and their families can thrive. Fortunately, there are organizations and institutions in the area that provide support and assistance to those living with Rett Syndrome. The Alabama State Department of Education Transition Services offers information on transition services and laws.
The Alabama Department of Senior Services also provides resources for those living with disabilities. The Alabama Disability Advocacy Program (ADAP) provides legal services to Alabamans with disabilities to protect, promote, and expand their rights. The University of Alabama at Birmingham (UAB) is one of 15 institutions in the United States designated as a Center of Excellence by the International Rett Syndrome Foundation. UAB's Ability Clinic provides physical therapy, occupational therapy, and speech therapy services, and has treated many children with Rett Syndrome.
This recognition makes UAB the go-to clinic for local families and helps educate other doctors about Rett Syndrome care. Family Empowerment Representatives are volunteers who provide emotional support, information, and resources to families affected by Rett Syndrome. The Alabama Early Intervention System (EIS) serves children from birth to 36 months of age who have a medical diagnosis that may delay development. If your child is school-aged, the school district will begin the Individualized Education Program process, which will include evaluations to be able to include your child in a district program.
United Ability's Ability Clinic is dedicated to identifying the diverse needs of people diagnosed with Rett Syndrome. They understand the diagnostic criteria for Rett Syndrome and are committed to accelerating full-spectrum research to cure Rett Syndrome and empower families with information, knowledge, and connectivity. Girls and women with Rett Syndrome are expected to demonstrate a wide range of emotions and enjoy satisfying social, recreational, and educational experiences at home and in the community. Although there are no approved treatments for Rett Syndrome yet, research from the network's clinical trials will play an essential role in ensuring that therapeutic development progresses as quickly as possible.
If you or someone you know is living with Rett Syndrome in Fairhope, Alabama, there are a number of resources available to help. Organizations like the Alabama State Department of Education Transition Services, the Alabama Department of Senior Services, the Alabama Disability Advocacy Program (ADAP), United Ability's Ability Clinic, Family Empowerment Representatives, the Alabama Early Intervention System (EIS), and the University of Alabama at Birmingham (UAB) all provide support and assistance for those living with Rett Syndrome.