Rett syndrome is a complex neurological disorder that affects the development of children, primarily girls. It is characterized by a wide range of symptoms, including impaired communication, motor skills, and social interaction. While there is no cure for Rett syndrome, there are treatments and resources available to help those affected by the disorder. In Fairhope, Alabama, families can access specialized care and support from the United Ability's Ability Clinic and the University of Alabama at Birmingham (UAB).The United Ability's Ability Clinic provides physical therapy, occupational therapy, and speech therapy services to children with Rett syndrome.
The clinic has extensive experience in treating children with the disorder and is familiar with their specific needs. The UAB Center of Excellence for Rett Syndrome is one of 15 institutions in the United States that has been designated as a leader in Rett syndrome care. The center provides families with emotional support, information, and resources to help them manage their child's condition. Dr. Percy, who was at Baylor Medical School in the 1980s, was one of the first doctors in the United States to identify Rett syndrome.
He now works at the hospital's main campus in Fairhope, Alabama. The hospital also offers outpatient services at Thomas Medical Center in Daphne, the Thomas Ambulatory Surgery Center in Fairhope, and emergency and imaging services at Thomas Emergency Hospital in Malbis. The Alabama State Department of Education Transition Services, Alabama Department of Senior Services, and Alabama Disability Advocacy Program are all available to provide information on transition services and laws. Families may also be able to participate in studies and trials to advance the treatment and knowledge of Rett syndrome. Families affected by Rett syndrome may have to travel a full day to see a doctor who knows about the disorder. However, with the resources available in Fairhope, Alabama, families can access specialized care and support closer to home.
The UAB Center of Excellence for Rett Syndrome will continue to be a leader in providing care for local families and educating other doctors about Rett syndrome.