Resources for Families in Alabama
Current Studies Seeking Patient Enrollment
Dr. Alan Percy
Director, Rett Clinic and Research Center
UAB - Civitan International Research Center
1530 - 3rd Avenue South CIRC 320
Birmingham, Alabama 35294-0021
Contact: Jerry Childers 800-822-2472, ext 7
University of Alabama at Birmingham, Birmingham, AL
Coordinator: Jane Lane, RN, BSN
E-mail: jlane@uab.edu
Telephone: 205-934-1130
New Resources will be added. Please let us know of any resources that you know about. You may send it to
EMPOWERING AND CONNECTING
RETT FAMILIES IN ALABAMA
Alabama Rett Connect
Related Links:
Statewide
Alabama Council for Developmental Disabilities
ACDD Public Forum Survey 2010
The Alabama Council for Developmental Disabilities wants to hear from its citizens with disabilities, family members, caregivers, and professionals. What do YOU think are the major needs and issues facing Alabamians with disabilities? Your feedback is needed and welcomed to help us prepare for the new five-year state plan for 2012-2017. Thank you for participating in this survey.
The Alabama Council for Developmental Disabilities
Is dedicated to improving the lives of those with developmental disabilities through advocacy, capacity building and systems change.
Consumer Involvement Fund
The CIF is a reimbursement program that provides partial funding for individuals with developmental disabilities, their family members, or their guardians in Alabama to participate in professional or informational conferences, legislative advocacy skills training events, public forums, focus groups, hearings and other similar activities. The intent of the CIF is to promote consumer empowerment and involvement in activities that enhance independence, productivity and community inclusion of people with developmental disabilities. Funds are distributed based on goals and priorities set by the Council.
Communication/Assistive Technology
This is a neat site that you can use to create communication cards. Just type your word in the "type card labels" and then type the same word in "type key search" then the site will pull up pictures!!! Explore all the other links on the site also!! Wonderful resource, try it!!!
Assistive Technology and Augmentative Communication Resources for Children with Disabilities
TASC - Accessible Computer Training
A Program of United Cerebral Palsy of Huntsville and Tennessee Valley. T.A.S.C. is committed to helping individuals with disabilities obtain and use technology to maximize independence.
STAR Training
STAR - Alabama's Assistive Technology Resource, is a federally funded program designed to increase access to and acquisition of Assistive Technology (AT) for Alabamians with disabilities.
Anna Finds Her Voice!!! Follow an Alabama Rett Family as they help their sweet angel Anna use modern technology to communicate
AbleNet
AbleNet offers a complete line of products and services for persons with disabilities including assistive technology, switches, mounts, and environmental control units.
Future Planning/ Life Insurance
MassMutual Financial Group
The Source of information for people with disabilities and other special needs and their families.
Liberty National Life Insurance
Beth Templeton- Phone # 256-236-0361 or Cell#256-295-2056
Ask Beth about the Modified Life Plan. Great Insurance for our childen with disabilites! She can serve FL, MS, and GA residents.
Health Care in Alabama
Alabama Medicaid Agency
Find Help with the cost of Medicine
Patient Advocate Foundation
Great Resource Guide, just click Alabama and scan all the organizations for the help you need!!
WELCOME to the National Center for Medical Home Implementation. This resource is for health professionals, families, and anyone interested in creating a medical home for all children and youth.
Legal/Advocacy
Alabama Parent Education Center
110 Company Street
Wetumpka, AL 36092-2715
(334) 567-2252
Alabama Disabilities Advocacy Program
The Alabama Disabilities Advocacy Program (ADAP) is part of the nationwide federally mandated protection and advocacy (P&A) system. ADAP's mission is to provide quality, legally based advocacy services to Alabamians with disabilities in order to protect. promote and expand their rights. ADAP's vision is one of a society where persons with disabilities are valued and exercise self-determination through meaningful choices, and have equality of opportunity.
205-348-4928
800-826-1675
THE ARC OF ALABAMA
The Arc of Alabama, Inc.
557 South Lawrence Street
Montgomery, AL 36104-4611
AL DAN (Alabama Disability Advocacy Network) is a grassroots cross disability coalition for networking, advocacy and advocacy education.
206 13th St South
Birmingham, AL 35233
Phone: 205-251-2223, ext. 102
Email: aldan1@bellsouth.net
Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.
There is a new network in Alabama for people that have family members with disabilities, Alabama Family to Family. This network allows families to share information , discuss issues relating to their family members and advocate for each other.
If you are interested check out their website @ www.Alfamilytofamily.com or their discussion site @ alfamilytofamily.ning.com
Checking out this exciting link for some great information!!
